Waiting game!!!

Wow! We have been so busy with lots of things I have not had time to blog! We finally got our genetic screening packet! Took me a couple of days to fill it out but it is now sent back to Cardinal Glennon and now we wait for our call for an appointment! Hoping to find out some more information about Brennan and if he does have any other underlying conditions related to Chiari. As for Brennan.. he is doing good. We have our good days and bad days with him. Last couple of days have been rough with him. His head still hurts along with his back. I was hoping his apppetite would change but so far nothing. I think the weather has been pretty rough on him. We continue to montior him and note changes in him. Thanks to everyone that keeps the prayers and thoughts coming our way! We appreciate them! 

Here is a pic from his 4 week post op. I think his scar looks good and healing well!

Check up

Hello everyone! Friday, February 13th was Brennans check-up from his surgery. The appt went well and they are very happy with how well the incision is healing!  During the visit they had him do a few neurological tests and checked him out. He has been complaining of his head hurting more and his lower back also. Anne, Dr. Elbabaa's nurse practitioner stated that if his back continued to hurt the next couple weeks then we would have a lower lumber MRI done. He is scheduled for a follow up MRI in July and another visit with Elbabaa too. We are just waiting on the paperwork to proceed with genetics testing to see if there are other underlying conditions with him. We will continue to monitor his Chiari and note any changes to the doctor.

Here you can see a progression of how well his incision is healing!

Busy! Busy!!

Wow! Been a while since we have made an update! Been trying to get back into the routine of things and adding a few doctor appts in between! Last Thursday we did a follow-up with Dr. Papazian to address the tube issue in his ears. During his ABR the audiologist told us his tubes were clogged and we needed to have them looked at. Needless to say while seeing Dr. Papazian he addressed that both tubes have fallen out but Brennan has alot of fluid agian in his ears. So we are scheduled for a hearing test with Dr.Lane in Monday and with those results we move to plan B which is still in the works! Friday marked two weeks since hia decompression surgery. Brennan is healing very well!  Dr. Elbabaa did an amazing job!

This week we have 3 appts for Brennan! Monday is with the ENT/Audiologist... Tuesday we see Dr. Gerwe for his 5 year check and follow up since his surgery and Friday we go back to Cardinal Glennon for  his follow-up since his surgery and talk about the next phase of dealig with Chiari! Busy! Busy!!

 In between all of this.. we did manage to celebrate his birthday!!