Thursday, June 11, 2015

B strong.. Brennan strong!

I can official say, I think this mama is about doctored out! These last few weeks I have been busy trying to figure out what the next step was after the genetic screening. After going rounds we are adding another doctor to the line up. We are scheduled to see a rheumatologist July 16. We are hoping to get more answers and maybe stronger meds to help with Brennan's pain.
                             

This was taken the other morning when he was attempting to eat breakfast. He was telling me how much his head and legs hurt. Its moments like this I really had a magic wand to take away the pain. The struggle is real. We have good days and bad days. I love it when we have good days with minimal pain. This pic just sums it up on the pain level that morning.

On a better note... we started selling t shirts for Brennan. Supporting him on on his journey with Chiari Malformation. 


The "B" is on the front of the shirt with the saying being on the back. I am pretty excited we already broke our goal! We will keep selling for the next couple of weeks. If anyone is interested in buying one, let me know! We thank Kellie Stormant for helping design and printing his shirts! !!

June 25, July 16 and July 21 are the next three major appointments coming up. These will hopefully give us more answers for Brennan. Possibly may even schedule another surgery depending on the outcome of the June 25th appointment. July 21 will be a huge one for us. This one is an MRI and a follow up to our neurosurgeon. They will be comparing his MRI from December to see how he is progressing from his surgery. I am hoping we also get good news with that too! Keeping my fingers crossed!

Brennan has had a few good weeks of speech now with Ms. Katelyn at the hosptial. She is definitely working her magic! Finally starting to hear some pronunciations of letters better. Brennan has been working hard on his "F" sounds. He is starting to work on his "D" sounds now. It's the little things that excite us!

Thanks to those that have been keeping Brennan in their prayers and thoughts. Still have a long road ahead of us! If you would to help Brennan out we also have a go fund me page set up. www.gofundme.com/brennensjourney. This will help with his medical bills and his therapy. We appreciate everyone that has helped Brennan on his journey!!!!