Getting ready for the summer!!

As I write I am sitting here during one of Brennan's therapy sessions.  Every Tuesday and Thursday Brennan comes for physical, occupational and speech therapy at the hosptial. We have been blessed to have my mom take him for us so Chris and I can work. Today, I came to see his progress. It is the little things that make me smile. I can remember when the doctors said he will need therapy. First we started with speech. Our speech therapist at the hosptial and at school are amazing. We went from not understanding him to now he announciates his words much better. He still stutters and slurs from time to time but what a big difference it has made! When he was diagnosed with Ehlers Danlos Syndrome last August the doctor said he definitly needs physical therapy to help build up his muscles. His motor skills are still not the greatest but he works hard. He has been practicing throwing a ball and working on his balance. There are days he hurts by the time he gets home because he works that hard and it wears him out. When he started occupational therapy he had the hardest time writing his name and letters. Honestly..  you couldn't make out some of the stuff he was writing out. I am proud of him on how on far he has come with his writing. For the first time ever, last week he had the best writing ever!!! He still has a hard time gripping the pencil but it is getting better.

This is the paper he brought home with his best writing ever!!! So proud of him!!! 

Seems like we went crazy with doctor appts at the beginning of the year and now they are coming sporadically. His 24 hour monitor he had to wear showed some tachycardia but nothing to worry about. We do not have to go back and see the cardiologist! He had his sleep study which came back abnormal so the neurologist wanted to do an EEG. Those results showed the damage of what Chiari has done to his brain. His brain has been squished for so long. Lots of therapy down the road for him. We go back to see Dr. Geller and Dr. Moore in June for our follow ups. In August we go back and see Dr. Frim for a follow up from his surgery and set a game plan for school next year! 

Our parks and recreation has set up a baseball league for special needs kids called the Challenger League. We are excited that he gets to play in it. Dr. Frim gave us his permission to let play  and we are excited that he gets to do something "normal". It has been hard on him since his brother plays baseball and he can't play. He sits in the dug out supporting his brother or he is crawling around in the dirt lol. He just wants to play and this is a great opportunity for him to meet new friends too! 

Over all.. we have our good days and bad days. I will take the good over the bad anyday but that is not always the case. The big appt we have been waiting on is his behavioral/developmental assessment. We are not scheduled until Dec 20th. Until then.. we wait and hope they can move us if a cancellation comes up!! For now we work hard in therapy and we will enjoy some baseball!!! :)