This past week has had a lot of up and downs. We did recieve the results of his genetic screening. What we thought was awesome news that everything was fine.. everything negative for all major medical they were looking for turned into not so good news the next morning. I got a phone call from the pediatrician that he also had his results. I told him we knew from the genetics counselor and everything was negative.. awesome!! Well not so much. The one test that was part of the Chiari puzzle.. they didn't even do it!!! That made my stomach turn. Livid was what I was feeling. So now we have hit a brick wall. I have made phone calls Friday and hoping to hear something this next week what the next step is. The one test that was crucial we still do not have answers for. So until then... we wait! The other part of the bad news was that our insurance is denying Brennan's speech therapy at the hosptial. It has been a back and forth deal with us and insurance. Long story short... I will be making an appeal. For those that know Brennan know he desperately needs this. Finally got him someone that is awesome and working with him one on one. For right now he goes one day a week since we have to pay until we get through the appeal. I don't want him to lose his spot! This mama has been a little stressed out this week! Hoping things will start to turn around for him and us. :)
The next big appointment is June 25 at the Craniofacial Institute at Cardinal Glennon. We meet with the plastic surgeon team to see if he truely has a sub mucous cleft palate. This will be a long appointment!
We would like to thank everyone for the continued thoughts and prayers. We still have a long road ahead. Also thank you to those that have helped with donating to Brennan's Go Fund Me page. If you would like to help Brennan out with his journey his go fund me page is www.gofundme.com/brennensjourney. This will help with his medical bills and therapy bills he has now and in the future!
No comments :
Post a Comment